My best friend and I both have the same ultra-rare condition and we found each other through a support group, but now I'm getting worse while her experimental treatment is working and we don't know how to talk about the guilt and fear that's growing between us.
More people experience this than they realize.
Shared identity through illness becomes complicated when trajectories diverge.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.