Periagoge
Scenario

When families struggle with rare disease caregiving balance

My brother has a rare neurological condition and our whole family revolves around his care, but some of us are burning out while others think we're not doing enough, and we can't seem to have an honest conversation about the resentment and exhaustion without someone feeling like a terrible person.

More people experience this than they realize.

What we've seen

Love becomes complicated when sacrifice is distributed unequally and guilt prevents honest conversation.

Your guide for this
Dipa
Dipa works with people navigating exactly this kind of situation.
Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

Peri

Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.

If this sounds familiar, the Library can help you find the bigger picture.