LibraryScenariosWhen couples face a new rare disease diagnosis together
Scenario

When couples face a new rare disease diagnosis together

My partner was just diagnosed with a rare autoimmune disease and we're both trying to figure out what this means for our future together, but I'm scared to voice my fears about how this might change everything because I don't want to be the person who can't handle it.

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More people experience this than they realize.

What we've seen

Fear of being inadequate prevents the very honesty that connection requires.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.