My wife's rare disease support group has become like family to us, but now there's conflict in the group about whether partners should attend meetings and some people think I'm too involved while others appreciate the support, and we don't know how to navigate this together.
More people experience this than they realize.
Intimate communities struggle to balance inclusion with the specific needs that created their bond.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.