Periagoge
Scenario

When parents disagree on rare disease treatment approaches

Our daughter's rare condition has no established treatment protocol and my husband and I disagree about whether to pursue experimental therapies — he wants to try everything while I worry about putting her through procedures that might not help, and we're stuck.

More people experience this than they realize.

What we've seen

Love manifests as opposing convictions, creating paralysis when decisive action feels essential.

Your guide for this
Dipa
Dipa works with people navigating exactly this kind of situation.
Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

Peri

Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.

If this sounds familiar, the Library can help you find the bigger picture.