Our daughter's rare condition has no established treatment protocol and my husband and I disagree about whether to pursue experimental therapies — he wants to try everything while I worry about putting her through procedures that might not help, and we're stuck.
More people experience this than they realize.
Love manifests as opposing convictions, creating paralysis when decisive action feels essential.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.