Our family has a genetic condition that causes early blindness and we're all at different stages - some of us have symptoms, others are waiting and watching. Family gatherings are tense because nobody wants to talk about it but it's affecting everyone's life decisions, and my parents keep trying to act like everything is normal while we're all terrified.
More people experience this than they realize.
Genetic risk creates a complex web of anticipatory grief and silence that isolates family members from each other.
“Where Are You with Eye health and vision?”
If this sounds familiar, the Library can help you find the bigger picture.