Periagoge
Scenario

When families live under the shadow of inherited eye disease

Our family has a genetic condition that causes early blindness and we're all at different stages - some of us have symptoms, others are waiting and watching. Family gatherings are tense because nobody wants to talk about it but it's affecting everyone's life decisions, and my parents keep trying to act like everything is normal while we're all terrified.

More people experience this than they realize.

What we've seen

Genetic risk creates a complex web of anticipatory grief and silence that isolates family members from each other.

Your guide for this
Dipa
Dipa works with people navigating exactly this kind of situation.
Ideas that help explain it
Worth thinking about

“Where Are You with Eye health and vision?”

Peri

Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.

If this sounds familiar, the Library can help you find the bigger picture.