Three of us became close friends through our kids having the same rare genetic condition, but now one family is considering moving across the country for a specialist and we don't know how to support her decision when we're all so dependent on each other for understanding.
More people experience this than they realize.
Bonds forged in shared struggle face the test of diverging needs and geographical reality.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.