Every specialist I see says my symptoms are interesting but they've never seen anything quite like it and I'm starting to feel like a medical curiosity rather than a person seeking help.
More people experience this than they realize.
Being perpetually interesting to medicine while remaining unsolved transforms the self from patient to puzzle, eroding the sense of being fundamentally human.
“Where Are You with Rare and orphan conditions?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.