I carry the gene for my family's hereditary condition but haven't developed symptoms yet and I don't know whether to live like I'm sick or healthy or something in between.
More people experience this than they realize.
Existing in the liminal space between health and illness, with no clear timeline or certainty, defies the human need for clear self-definition.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.