LibraryScenariosWhen fluctuating rare diseases create multiple identities
Scenario

When fluctuating rare diseases create multiple identities

I have a rare condition that causes chronic pain but also occasional periods of complete remission and I don't know which version of me is real or which life I should plan for.

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More people experience this than they realize.

What we've seen

Cyclical symptoms create competing versions of self that feel equally authentic, making coherent life planning and identity formation nearly impossible.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.