I spend hours every day researching treatments for my condition that might not even exist and my husband says I'm obsessed but stopping feels like giving up on myself.
More people experience this than they realize.
The thin line between reasonable advocacy and compulsive seeking blurs when conventional medicine offers no clear path forward.
“Where Are You with Rare and orphan conditions?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.