LibraryScenariosWhen chronic illness expertise becomes your entire identity
Scenario

When chronic illness expertise becomes your entire identity

I've become an expert in my own disease but I miss when I had other things to think about. My entire personality feels like it's been consumed by medical terminology and symptom tracking.

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More people experience this than they realize.

What we've seen

Necessary self-advocacy and monitoring can eclipse other dimensions of selfhood.

Ideas that help explain it
Worth thinking about

“Where Are You with Chronic illness — living with a long condition?”

If this sounds familiar, the Library can help you find the bigger picture.