Periagoge
Scenario

How to handle unwanted medical authority in rare disease families

I've become the family expert on my son's genetic condition and now everyone defers to me for medical decisions but I'm just a marketing manager who learned to read research papers out of desperation.

More people experience this than they realize.

What we've seen

Necessity has forced an assumption of expertise that feels both essential and fraudulent, creating an uncomfortable gap between perceived and actual competence.

Your guide for this
Dipa
Dipa works with people navigating exactly this kind of situation.
Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

Peri

Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.

If this sounds familiar, the Library can help you find the bigger picture.