Periagoge
Scenario

Why rare disease survivors struggle with future planning

I've been in remission from my rare cancer for three years but I can't shake the feeling that I'm living on borrowed time and making long-term plans feels like tempting fate.

More people experience this than they realize.

What we've seen

The experience of unlikely illness creates a permanent sense of existential fragility that logical recovery statistics cannot overcome.

Your guide for this
Dipa
Dipa works with people navigating exactly this kind of situation.
Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

Peri

Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.

If this sounds familiar, the Library can help you find the bigger picture.