LibraryScenariosWhy rare disease survivors struggle with future planning
Scenario

Why rare disease survivors struggle with future planning

I've been in remission from my rare cancer for three years but I can't shake the feeling that I'm living on borrowed time and making long-term plans feels like tempting fate.

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More people experience this than they realize.

What we've seen

The experience of unlikely illness creates a permanent sense of existential fragility that logical recovery statistics cannot overcome.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.