I've had this rare condition for fifteen years and I'm tired of being brave and inspiring—I just want to complain sometimes without someone telling me how strong I am.
More people experience this than they realize.
The social expectation to transform suffering into inspiration denies the legitimacy of ordinary human responses to ongoing hardship.
“Where Are You with Rare and orphan conditions?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.