I've raised over fifty thousand dollars for research into my daughter's condition but sometimes I wonder if I'm just funding false hope for myself and other desperate parents.
More people experience this than they realize.
The urgent need to act conflicts with uncertainty about whether the actions taken serve genuine progress or merely the psychological need to do something.
“Where Are You with Rare and orphan conditions?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.