LibraryScenariosHow to make reproductive choices with inherited rare diseases
Scenario

How to make reproductive choices with inherited rare diseases

My brother died from the same genetic condition I have and I don't know if I should have children because I can't decide if existence with this disease is a gift I'm giving or a curse I'm passing on.

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More people experience this than they realize.

What we've seen

The fundamental question of whether life with significant suffering is worth living becomes unavoidably personal when considering future generations.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.