LibraryScenariosHow to cope with genetic guilt in rare disease families
Scenario

How to cope with genetic guilt in rare disease families

My daughter's genetic condition came from me and even though I know it's not my fault I can't stop feeling like I broke the most important thing I'll ever make.

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More people experience this than they realize.

What we've seen

Rational understanding of genetic randomness cannot overcome the primal sense of responsibility for passing on suffering to one's child.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.