My husband and I both tested positive for being carriers of a lethal genetic condition after our baby died and now I don't know if we're still the same people who fell in love before we knew we could create death.
More people experience this than they realize.
Learning of one's capacity to pass on fatal conditions fundamentally alters self-perception and the meaning of intimate partnership.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.