My rare autoimmune condition flares unpredictably and I've stopped making plans more than a week out because I'm tired of disappointing people when my body betrays me.
More people experience this than they realize.
The unpredictable nature of illness erodes the social contract of reliability, leading to progressive withdrawal from normal life rhythms.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.