My rare condition is invisible and I've gotten so good at managing it that people forget I'm sick, but the constant performance of wellness is exhausting me.
More people experience this than they realize.
The success of adaptation creates its own burden when others can no longer see or accommodate the underlying struggle.
“Where Are You with Rare and orphan conditions?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.