LibraryScenariosHow rare diseases can force social isolation through daily requirements
Scenario

How rare diseases can force social isolation through daily requirements

My rare metabolic disorder means I have to follow a diet so restrictive that I haven't eaten a meal with other people in months and I'm starting to forget what normal social life feels like.

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More people experience this than they realize.

What we've seen

Medical necessities that diverge dramatically from social norms create inevitable barriers to community participation and shared human experiences.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.