My son's rare syndrome affects his behavior in ways that look like bad parenting to strangers and I've stopped going places because I can't handle another judgmental look or unsolicited advice.
More people experience this than they realize.
The external manifestation of internal medical realities subjects families to social judgment based on incomplete and inaccurate assumptions.
“Where Are You with Rare and orphan conditions?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.