My teenage daughter has the same rare genetic condition I do but her symptoms are much worse and I can't decide if my experience helps me understand her struggle or completely blinds me to it.
More people experience this than they realize.
The assumption that identical diagnoses create identical experiences can obscure the unique ways each person encounters and adapts to the same condition.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.