LibraryScenariosWhen you can't find meaning in your child's rare condition
Scenario

When you can't find meaning in your child's rare condition

The other parents in the rare disease support group all seem to have found meaning and purpose in their journey but I just feel robbed and angry and I think that makes me a bad person.

Dipa
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More people experience this than they realize.

What we've seen

The social pressure to transform suffering into purpose conflicts with the authentic experience of loss and rage.

Ideas that help explain it
Worth thinking about

“Where Are You with Rare and orphan conditions?”

If this sounds familiar, the Library can help you find the bigger picture.