The rare disease community online is incredibly supportive but sometimes I just want to talk to someone who doesn't know what a chromosome deletion is and won't start sharing their own medical horror stories.
More people experience this than they realize.
The intensity of shared struggle can create community bonds that, while precious, cannot fulfill the human need for relationships uncomplicated by crisis.
“Where Are You with Rare and orphan conditions?”
If this sounds familiar, the Library can help you find the bigger picture.