LibraryScenariosWhether to burden your children with knowledge of inherited fatal illness
Scenario

Whether to burden your children with knowledge of inherited fatal illness

I am forty-one and just found out I carry the gene for Huntington's disease and I have to decide whether to tell my children they might have inherited this death sentence.

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More people experience this than they realize.

What we've seen

The parent weighs protecting their children's present peace against their right to make informed life choices.

Ideas that help explain it
Worth thinking about

“Where Are You with Mortality as teacher — death as clarifying force?”

If this sounds familiar, the Library can help you find the bigger picture.