I spend forty hours a week managing my daughter's rare disease appointments and insurance claims and I have lost who I was before this became my entire life.
More people experience this than they realize.
The necessary intensity of medical coordination gradually replaces other aspects of selfhood, creating existential displacement.
“Where Are You with Parenting a child with chronic illness?”
Peri can explain why this happens, help you decide if this is the right situation for you, and point toward the right journey or coach.
If this sounds familiar, the Library can help you find the bigger picture.