My daughter's rare disease has no cure and the other parents in our group keep talking about breakthroughs but I just want to help her have a good life with what we have.
More people experience this than they realize.
The tension between hope for cure and acceptance of reality requires navigating between communities that embrace different philosophies of suffering.
“Where Are You with Parenting a child with chronic illness?”
If this sounds familiar, the Library can help you find the bigger picture.